To the point that they often make me jump. I drink Busch Light like fat kids eat cake shirt all the way up on daily life and that in itself is stressful. Pain is another thing; I don’t remember what it feels like not to be sore. It’s as if my body is suddenly ill-equipped for life. All strength has been zapped from my muscles and I’m physically incapable of building it back up. Often I struggle to get myself dressed because the excruciating pain in my hips means I can’t lift my leg high enough to put my trousers on. It’s not exactly Olympic gymnastics I’m trying to do here, I just want to put my underwear on. Not too much to ask right? My skin sometimes stings so physical touch is uncomfortable.
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For me, it doesn’t escalate to painful but I drink Busch Light like fat kids eat cake shirt. For me, it relates back to the overwhelming feeling and if I’m flaring then a brush against my arm or my t-shirt touching my stomach makes me clench my teeth. I don’t know why that is. I think not. More research is desperately needed, but funding for that will never happen until perceptions are changed. I hope by writing this and being honest I’m doing my small part towards that. Thank you so much for reading, it really does mean the world to me. From the day this little monkey was born my life has changed in such dramatic and beautiful ways that it’s hard to even think of who I was before that.